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Directory

Rare Disease Companies in the UK

Rare disease companies develop diagnostics, therapies and research technologies for conditions affecting relatively small patient populations. Their work often focuses on inherited disorders, complex diagnostic pathways and diseases with limited or no existing treatment options.

This category includes companies working on:

  • Orphan drugs and rare disease therapeutics
  • Genetic testing and molecular diagnostics
  • Gene, RNA and cell therapies
  • Biomarkers and natural history studies
  • Patient identification and clinical development

Browse 128 UK rare disease companies below.

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Rare Diseases
Showing 13–24 of 128
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Neurochase

South West England

Convection enhanced delivery consulting and devices for CNS therapeutics

Neurochase is a contract research and consulting organisation specialising in targeted drug delivery to the CNS using convection enhanced delivery. Working with pharmaceutical and…

CRO
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Takeda

Greater London

Takeda's UK clinical development and drug discovery operations

Takeda UK encompasses the British operations of Takeda Pharmaceutical Company, one of the world's largest biopharmaceutical companies. The London-based Takeda Development Centre…

Biopharma
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Awen Oncology

Wales

Targeting developmentally-silent oncogenic drivers for cancer therapy

Awen Oncology is a Welsh oncology biotechnology company developing first-in-class therapeutics that target cancer-specific proteins derived from developmental genes that are…

Biotech
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ERGOMED

South East England

Full-service CRO and pharmacovigilance services for biopharma

Ergomed is a global contract research organisation providing clinical development, pharmacovigilance, and regulatory compliance services to the pharmaceutical and biotechnology…

CRO
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Dawn Therapeutics

Greater London

Tissue-targeted gene and RNA delivery platforms for rare and neurological disease

Dawn Therapeutics is a pre-clinical biotechnology company developing precision delivery platforms for genetic medicines targeting the central nervous system, cartilage, and bone.…

Biotech
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Evox Therapeutics

South East England

Exosome-delivered gene editing therapies for neurodegenerative diseases

Evox Therapeutics is a biotechnology company developing exosome-based gene editing therapies for rare, genetically driven neurodegenerative diseases. Its proprietary platform uses…

Biotech
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Norgine

Wales

European specialty pharma focused on gastroenterology and hepatology

Norgine is a European specialty pharmaceutical company developing, manufacturing, and commercialising medicines across gastroenterology, hepatology, and cancer supportive care.…

Biopharma
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Verona Pharma

Greater London

Inhaled therapies for COPD and chronic respiratory diseases

Verona Pharma is a biopharmaceutical company developing and commercialising inhaled therapies for chronic respiratory diseases. Its lead product, ensifentrine, is a first-in-class…

Biopharma
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Oxford StemTech

South East England

High-throughput iPSC reprogramming and stem cell drug discovery services

Oxford StemTech is a contract research company providing induced pluripotent stem cell (iPSC) reprogramming and drug discovery services using its proprietary platform. The…

CROBiotech
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BlackfinBio

Yorkshire

AAV gene therapies for rare neurological diseases of childhood

BlackfinBio is a biotechnology company developing AAV-based gene therapies for rare neurodegenerative diseases of the central nervous system, with an initial focus on children.…

Biotech
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Kindling Bio

Greater London

Gene therapy platform targeting paediatric solid tumours

Kindling Bio is a biotechnology company developing a gene therapy platform designed specifically for childhood cancers. The platform engineers a biological signal that renders…

Biotech
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Insmed

East of England

Rare and serious disease therapeutics with Cambridge R&D hub

Insmed is a US biopharmaceutical company with commercial-stage and late-pipeline products spanning respiratory, inflammatory and rare neurological diseases. Its Cambridge facility…

Biopharma
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