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Directory

Rare Disease Companies in the UK

Rare disease companies develop diagnostics, therapies and research technologies for conditions affecting relatively small patient populations. Their work often focuses on inherited disorders, complex diagnostic pathways and diseases with limited or no existing treatment options.

This category includes companies working on:

  • Orphan drugs and rare disease therapeutics
  • Genetic testing and molecular diagnostics
  • Gene, RNA and cell therapies
  • Biomarkers and natural history studies
  • Patient identification and clinical development

Browse 128 UK rare disease companies below.

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Rare Diseases
Showing 97–108 of 128
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GeneHub

Greater London

Patient-controlled DNA biobank platform for precision prescribing insights

GeneHub is a London-based digital health company operating a patient-controlled biobank platform that rewards patients with free DNA tests and insights in exchange for sharing…

Software
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Northumbria Pharma

North East England

Generic and branded prescription medicines development and supply

Northumbria Pharma is a pharmaceutical company specialising in the development, manufacture, licensing, and supply of generic and branded prescription medicines across primary and…

Biopharma
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Theolytics

South East England

Oncolytic viral therapies engineered for intravenous cancer treatment

Theolytics is a clinical-stage biotechnology company developing oncolytic viral therapies for cancer. Its phenotypic screening platform enables the discovery and development of…

Biotech
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Beacon Therapeutics

Greater London

AAV gene therapy company targeting inherited and common retinal diseases

Beacon Therapeutics is a clinical-stage UK biopharma company developing adeno-associated virus (AAV) gene therapies for retinal diseases causing blindness. Its lead programme,…

Biopharma
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Apollo Therapeutics

East of England

Pharma-university venture funding early-stage translational research

Apollo Therapeutics is a biopharma company advancing therapeutic programmes derived from research at partner universities including Cambridge, Imperial College London, UCL, King's…

Biopharma
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Resolution Therapeutics

Scotland

Engineered macrophage cell therapy for inflammatory and fibrotic disease

Resolution Therapeutics is a clinical-stage biotech developing regenerative macrophage therapies for inflammatory and fibrotic diseases. Its platform harnesses the…

Biotech
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Guilford Street Laboratories

Greater London

AI-driven mass spectrometry biomarker services for diagnostics and drug development

Guilford Street Laboratories Ltd is a contract research organisation providing machine learning-powered mass spectrometry services for biomarker discovery, assay development, and…

CRO
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Healx

East of England

AI-powered drug discovery and repurposing for rare diseases

Healx is a clinical-stage biotech applying AI to drug discovery and repurposing for rare diseases. Its platform analyses drug and disease data at scale to identify novel treatment…

SoftwareBiotech
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Ipsen

Wales

Specialty biopharma with UK neurotoxin manufacturing hub

Ipsen is a French specialty biopharmaceutical company with one of three global hubs based in the UK. Its Wrexham site serves as the company's global neuroscience centre of…

Biopharma
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Juno Genetics

South East England

Preimplantation and prenatal genetic testing for reproductive medicine

Juno Genetics is a specialist reproductive genetics laboratory providing preimplantation genetic testing (PGT) services to IVF clinics in the UK and internationally. Using its…

CROBiotech
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Lir Therapeutics

Greater London

AI-driven AAV capsid engineering for next-generation gene therapy

Lir Therapeutics is an early-stage biotechnology company redesigning adeno-associated virus capsids for gene therapy using an AI-first platform. Its platform integrates…

BiotechSoftware
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SiSaf

South East England

Silicon-based RNA delivery platform for rare disease therapeutics

SiSaf is a biopharmaceutical company developing RNA therapeutics using its proprietary platform, which combines bioabsorbable silicon with organic lipid materials to improve the…

Biotech
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